Enjoying school and socializing – a guide for young Peristeen® Plus users
From attending school to enjoying activities with friends, we believe nothing should stop your child from doing the same things as others:
- Reflect on with whom you want to discuss your child's situation
- Why you want to discuss your child's situation
- What to say specifically
Preparing in advance by writing down what you want to say and trying to anticipate some of the questions you may be asked can be helpful.
Notify others about your child’s condition
Making others aware of your child’s condition can make it easier in the event of unexpected accidents when you are not present. Before deciding whether to inform others, take time to reflect on who you want to discuss your child’s situation with, why you want to discuss it, and what you should say specifically. It can also help to prepare in advance by writing down what you want to say, and trying to anticipate some of the questions you might be asked.
Sophia, 8, was born with spina bifida and uses Peristeen, “Sophia’s school teachers know that she is on a bowel management program and we have a plan if accidents occur. She’s in the second grade now and we’ve never had an accident once.”* Tane, Sophia's mother
Build your child’s confidence
Social activities that can take some of the focus away from your child’s bowel issues are a great way to build their confidence by helping them learn new skills and giving a sense of belonging. Start with small trips. As their confidence increases, encourage them to join local sports club or an after-school activity where they can build new friendships and socialize.
Quint, 12, was born with spina bifida and uses Peristeen, “Quint joined a scout group for kids with disabilities – being with others just like him has helped grow his confidence.”* Esther, Quint’s mother
Jonas, 5, was born with spina bifida and uses Peristeen, “Jonas will soon be old enough to stay over at friends’ houses. When that happens, we would probably do Peristeen the day before so he has the confidence to know he can really enjoy himself the next day.”* Jasmin, Jonas’ mother
Remember you and your child are not alone
Meeting others in your situation can be helpful for both you and your child. Besides learning from their experience, you can also gain reassurance from knowing others have succeeded. Consider searching for patient organizations in your area through social media or by getting in touch with your Coloplast® Care Advisor at 1-855-605-7594 for suggestions.
*Coloplast has compensated these caregivers to share their product experience. Each person's situation is unique so your experience may not be the same. Talk to your healthcare provider about whether this product is right for you.
Information from Coloplast® Care is for educational purposes only. It is not intended to substitute for professional medical advice and should not be interpreted to contain treatment recommendations. You should rely on the healthcare professional who knows your individual history for personal medical advice and diagnosis. Prior to use refer to product labeling for complete product instructions for use, contraindications, warnings and precautions.
Indication: The Peristeen® Plus Transanal Irrigation System is intended to instill water into the colon through a rectal catheter, which incorporates an inflatable balloon, inserted into the rectum to promote evacuation of the contents of the lower colon. The Peristeen Plus Transanal Irrigation System is indicated for use by children (2 years - <12 years old), adolescent (12 years - < 18 years old), transitional adolescent (18 - <21 years old) and adult patients with neurogenic bowel dysfunction who suffer from fecal incontinence, chronic constipation, and/or time-consuming bowel management procedures.
Contraindications: Peristeen Plus Transanal Irrigation must not be used in the following situations: known anal or colorectal stenosis, colorectal cancer (active/recurrent), radiotherapy to the pelvis, and recent abdomino-perineal surgery, active inflammatory bowel disease, acute diverticulitis, severe diverticulitis, previous diverticulitis and diverticular abscess, chronic symptomatic diverticular disease, within 3 months of abdominal, anal or colorectal surgery, within 4 weeks of endoscopic polypectomy, recent colonic biopsy, recent endoscopic mucosal resection (EMR) and recent endoscopic sub-mucosal dissection (ESD), severe autonomic dysreflexia, ischemic colitis, during Spinal Cord Shock Phase, complex diverticular disease, in patients who are pregnant and have not used the system before*. Since the list is not exhaustive, the healthcare professional should always consider individual patient factors as well. *If the patient is pregnant and has never used transanal irrigation before, they should not start the irrigation procedure during pregnancy.
Warnings: Peristeen Plus Transanal irrigation procedure should always be carried out with caution. Bowel perforation is an extremely rare, but serious and potentially lethal, complication to transanal irrigation and will require immediate admission to a hospital, often requiring surgery. See the device manual for complete user instructions, contraindications, warnings, precautions, and potential complications/adverse events. For further information, call Coloplast Corp at 1-855-605-7594 or consult the company website at www.coloplast.us. Caution: Federal law restricts this device to sale by or on the order of a physician.
