Becky was 14 years old when her ordinary teenage life changed. On her way to the neighboring town of Wilmot, South Dakota, she got into a car accident. Becky flew out of the car's sunroof and the result was devastating: she was paralyzed from the waist down.
Learning to use a bathroom in a new way
Being paralysed and bound to a wheelchair can be challenging enough, but needing to learn how to go the bathroom again and in a whole different way - on top of all the other changes the body is going through - was overwhelming to Becky. “You're doing it on your body, which you can't even feel. You don't even know where the different body parts are anymore, because you can't feel your bottom. It was a lot, especially at the age of 15 when you're embarrassed about everything. Your body is changing, you don't want to talk to anybody about this stuff. You just want to be private.”
Nevertheless, learning to manage a bowel routine and building a routine was a requirement for Becky before being discharged, “It was the most disgusting thing. It was something very intimate to me and something very private, but it was a checkbox I needed to check before they discharged me.”
Finding the right treatment
Although Becky had a solution to empty her bowel when she was discharged, it would only last for a while. During the years after her accident Becky tried it all. She's tried suppositories, laxatives and enemas. Some solutions would work for a while, nothing ever had a long-lasting effect and the constant worry and occasional accidents became a part of Becky’s everyday life.“The oral laxatives were unpredictable, and I never knew when they were going to kick in. I didn't have disastrous moments but there was one time in my brother’s car, one time on a backrest table during an X-ray and several times at work. You're kind of hopeless and powerless when these accidents happen. It was a headache and a frequent topic of conversation with my doctor.”
But one day, Becky received a call from her doctor that will forever stand out in her mind. He was calling to tell her about the new Peristeen® Transanal Irrigation System.“It was a call of hope. Even though he couldn't promise me any miracle with Peristeen, I was so elated and so excited that the doctor had to calm me down. If I had one wish, it wouldn't be to walk again, it would be to have my bowel control, so getting a lasting solution would be a huge for me.”
Since starting with the Peristeen system, Becky has gone from irrigating her bowels every day to every other day and hasn't had an accident in months. “It’s amazing. My routine has freed up a whole day. I had a few accidents in the beginning when finding and getting used to my routine, but now I haven’t had one in months”.
Who am I now?
Growing up, Becky was a dedicated athlete. At the time of her accident, Becky loved basketball and her biggest dream was to be a basketball player, so during the off-season she took up every sport she could think of to stay in shape: volleyball, swimming and running track.
When Becky woke up in the hospital bed, everything she had ever hoped for her future seemed unattainable. Who was she now without her athletic identity?
“When I was injured, a lot of my identity was taken from me because I was a huge athlete. I had to figure out in the years after that who Becky was again. So, I struggled with my identity for a while until I found out how to think of myself differently and embrace all the things I could still do”.
Coming to terms with being in a wheelchair was difficult for Becky, but her optimistic outlook on life propelled her forward. She started to dedicate more time to her education and being a good student. As Becky argued, “The bad things in your life can make you a bitter person or a better person. It's up to you to figure it out. I may not have had my legs, but I had my mind”.
A few years later, Becky graduated with honors. She later stepped into the financial world, where she works as a manager in a credit union today.
Returning to what she loves
While getting used to her new life as a paraplegic, Becky slowly got back into doing sports.
Over time, she went back to the swimming pool, got a certified scuba diving licence, started mono-skiing and joined a handcycling club. With her Peristeen system, she now has more control over her bowels, which helps her plan her exercise. Her best advice is to set up goals and expectations to yourself. “You got to push yourself, don't give up. Baby steps are okay but have goals. My family were always supportive, loving and wanting to be there for me, but they also pushed me mentally. One of the questions I got from one of my sisters after the accident, when I was still in rehab at the hospital was, if I could still do the dishes. They weren't letting me off the hook. And it did push me to be a better person, be a better student, be a better athlete, which was a gift.”
* Coloplast has compensated this user to share her product experience. Each person's situation is unique so your experience may not be the same. Talk to your healthcare provider about whether this product is right for you.
Information from Coloplast® Care is for educational purposes only. It is not intended to substitute for professional medical advice and should not be interpreted to contain treatment recommendations. You should rely on the healthcare professional who knows your individual history for personal medical advice and diagnosis. Prior to use refer to product labeling for complete product instructions for use, contraindications, warnings and precautions.
Indication: The Peristeen® Plus Transanal Irrigation System is intended to instill water into the colon through a rectal catheter, which incorporates an inflatable balloon, inserted into the rectum to promote evacuation of the contents of the lower colon. The Peristeen Plus Transanal Irrigation System is indicated for use by children (2 years - <12 years old), adolescent (12 years - < 18 years old), transitional adolescent (18 - <21 years old) and adult patients with neurogenic bowel dysfunction who suffer from fecal incontinence, chronic constipation, and/or time-consuming bowel management procedures.
Contraindications: Peristeen Plus Transanal Irrigation must not be used in the following situations: known anal or colorectal stenosis, colorectal cancer (active/recurrent), radiotherapy to the pelvis, and recent abdomino-perineal surgery, active inflammatory bowel disease, acute diverticulitis, severe diverticulitis, previous diverticulitis and diverticular abscess, chronic symptomatic diverticular disease, within 3 months of abdominal, anal or colorectal surgery, within 4 weeks of endoscopic polypectomy, recent colonic biopsy, recent endoscopic mucosal resection (EMR) and recent endoscopic sub-mucosal dissection (ESD), severe autonomic dysreflexia, ischemic colitis, during Spinal Cord Shock Phase, complex diverticular disease, in patients who are pregnant and have not used the system before*. Since the list is not exhaustive, the healthcare professional should always consider individual patient factors as well. *If the patient is pregnant and has never used transanal irrigation before, they should not start the irrigation procedure during pregnancy.
Warnings: Peristeen Plus Transanal irrigation procedure should always be carried out with caution. Bowel perforation is an extremely rare, but serious and potentially lethal, complication to transanal irrigation and will require immediate admission to a hospital, often requiring surgery. See the device manual for complete user instructions, contraindications, warnings, precautions, and potential complications/adverse events. For further information, call Coloplast Corp at 1-855-605-7594 or consult the company website at www.coloplast.us. Caution: Federal law restricts this device to sale by or on the order of a physician.
