Whether you are waiting for ostomy surgery, newly discharged, or have already been living with an ostomy for some time, there may be times when it is important your healthcare provider knows about your sexual orientation or gender identity to ensure they can provide you with the best care and support tailored to your individual needs.
This article provides support to help you manage conversations regarding LGBTQ+ concerns related to living with an ostomy, as well as offering advice on what to do if you do not feel you are receiving the support you need.
How do I come out to a healthcare provider?
If you do not disclose your sexual orientation or gender identity to a healthcare provider, it is possible the advice and support you receive is not tailored to your individual needs. Specific issues or challenges may be overlooked because your doctor will not have the full picture of how an ostomy may affect you in your daily life.
It is always your choice to discuss your sexual orientation or gender identity. If you choose to have this conversation, there are ways to make it less stressful.
Own your identity
Treat this information as a matter of fact. Every day, doctors and healthcare providers see many people from all backgrounds and handling personal and sensitive information is second nature to them. You can present your sexual orientation or gender identity to them in just the same way you would make them aware of any other facts that may impact your care.
Bring someone with you
Sometimes, people feel more comfortable if they bring someone they trust doesn't involve disclosing your sexuality.
If your partner is not with you, you may refer to them using their pronouns, instead of by name or as “your partner”. Again, this may help you to make your healthcare provider aware of your individual situation matter of factually.
Written words may help
If you are anxious about starting a conversation about your personal life with your healthcare provider, it may help to instead inform them via letter or email. This allows you time to think about exactly what you want to say, and how.
When attending an appointment, some people also prefer to bring a list of relevant questions, so they don’t forget anything during the consultation. It may be a stressful situation and having written notes helps you to structure the conversation and ensure you get the answers you need.
Using pronoun tools
Sometimes, people like to use a pronoun badge or an identifiable tool to indicate their pronouns and gender to others – these are commonly available online or at events such as Pride. Doing so may make it easier for you to come out or discuss your concerns with your healthcare provider. Equally, if you request your doctor to use particular pronouns such as ‘they’/’them’, for example, or state you identify as non-binary, you can also kickstart a conversation about your gender identity. That way, when discussing your stoma, your doctor will be more aware of certain elements of a life with an ostomy that may affect your personal life.
What do I do if I am not getting the support I need from my healthcare provider?
If you feel that your doctor is not knowledgeable about LGBTQ+ concerns when it comes to living with an ostomy, it's important to advocate for your own healthcare and find a provider who can better meet your needs. The following explores some steps you can take to receive better care.
Be clear about what you want
You may want to independently investigate LGBTQ+ health issues, specifically related to living with an ostomy. Understanding your own needs and concerns may help you communicate them effectively to your doctor.
Find an LGBTQ+-friendly doctor
You can also research LGBTQ+-friendly doctors: Look for healthcare providers who have experience and expertise in LGBTQ+ healthcare. You can start by searching online directories, LGBTQ+ community resources, or support groups. Don’t underestimate the value of first-hand advice: consider reaching out to LGBTQ+ organizations in your area for recommendations or asking friends or local community members for their suggestions.
Seek a second opinion
If you're unsure about your doctor's knowledge or ability to address your concerns, consider seeking a second opinion from another healthcare provider. They can provide an alternative perspective and potentially offer more appropriate care.
Communicate your concerns
Where possible, communicate your concerns openly with your doctor. Explain what specific issues you are facing as an LGBTQ+ person with an ostomy and ask if they have experience in addressing those concerns. They may be willing to learn or refer you to a more knowledgeable colleague. If you feel uncomfortable doing this face-to-face, an email or letter to your doctor’s office.
Remember, you do have the option to request a different doctor if you do not feel your needs are being met.
Taking further action
If you believe your doctor has acted unprofessionally or provided inadequate care due to your LGBTQ+ identity, you may wish to file a complaint. This step may be pursued if you have valid concerns about the quality of care you have received.
You should always feel comfortable discussing your ostomy care with your nurse or doctor. If you feel discriminated against or overlooked by your current doctor due to your LGBTQ+ status, it's important to prioritize your well-being and seek medical advice and support from a provider who respects and understands your needs.
Key takeaways
- Informing your healthcare professional about your LGBTQ+ status may help to ensure you receive ostomy care specific to your needs
- Living with an ostomy can impact people’s lives differently, and someone’s gender identity or sexual orientation may affect the type of support they require
- It is always your choice to disclose your sexual preferences or gender identity
Remember that you have the right to respectful and compassionate healthcare. It may take some effort to find a doctor who meets your needs, but don't hesitate to advocate for yourself and seek out a healthcare provider who will provide the support you deserve. Coloplast Care is on hand to provide further support if needed.
This information is for educational purposes only. It is not intended to substitute for professional medical advice and should not be interpreted to contain treatment recommendations. You should rely on the healthcare professional who knows your individual history for personal medical advice and diagnosis.
Call your healthcare provider if you have any medical concerns about managing your ostomy. You may also contact your Coloplast® Care Advisor for product usage and availability questions at 1-877-858-2656.
