Talking to others about your ostomy can be a daunting task. It is generally helpful to have a fairly strategic approach - especially in the beginning.
How to prepare for conversation
Start by contemplating what you want to get out of the conversation. Do you want to be able to talk openly with the other person or do you wish to show that nothing has really changed?
This will help you address the feelings, needs or concerns in the particular situation instead of "just" talking about your ostomy - and have a much better chance to avoid getting disappointed or feeling exposed.
Write the beginning of the conversation down
This may seem silly, but often it is only the beginning of a difficult conversation that is actually difficult. So by knowing exactly what you want to start with, you make it easier for yourself to approach it.
Have a positive attitude
How you act and how you say what you want to say will greatly influence the outcome of the conversation. So even though you're nervous, take a deep breath and remain positive. Your listener will most likely copy this position and feel more relaxed.
A bit of well-placed light-heartedness can also help ease the tension for both you and your surroundings and help you control the tone of the conversation.
Put yourself in your listener's position and find common ground
Your listener most likely did not have the benefit of being prepared for the conversation. Before you get upset or angry about a disappointing response, try to put yourself in the position of your conversation partner. Perhaps an angry response is merely an emotional response to being afraid of losing you or the relationship the two of you have?
Acknowledge the other party's feelings and reasons for reacting as he or she did. This will make him more responsive when you tell how you would wish he had reacted and what it made you feel.
Try to identify the common concerns you might have, and build on what you share to create common ground. This is the best way to get a constructive, giving conversation.
When the conservation gets too serious
It's easy to become obsessed with talking about your ostomy and focusing on it. Shifting focus away from your ostomy from time to time to resume conversations about your 'old' passions, hobbies and interests will help reassure friends and family that your relationship has not changed.
You don't need to include everybody
When discussing your condition with anyone, you put yourself in a deeply vulnerable position. And with the exception of any children or grandchildren, you should have these conversations for your sake, not for others.
If someone is not giving you the opportunity to express your thoughts and feelings but rather bombarding you with advice, however well-meaning, feel free to close down the conversation.
What to say to children
If there are young children or grandchildren in your life, your first thought might be that they are too young to understand.
But hiding the truth from them can make them think a situation is more serious than it really is, and children tend to cope well if they are given the information in a simple and honest way.
How to tell teenagers
It is not uncommon for teenagers or even older children that they react with anger or withdrawal when confronted with a parent's health condition or surgery.
Some parents choose to tell their teenagers only key points about their surgery, but remember that in spite of the unwelcoming reactions, it is still important for them to hear your open and honest answers to their questions. Also keep in mind that any anger is just thinly veiled love for you and rooted in fear of losing you.
