It may seem overwhelming to get back to performing daily routines, hobbies and activities you used to do. You probably feel very tired in the beginning, so start out slowly.
Going back to work
Whether your condition allows you to return to work or not very much depends on the operation you have had and your doctor's advice. If you do plan on returning to work, it is important to discuss your options with your employer as soon as possible. Some may be able to offer you to work reduced hours, for an initial period, as your body is still adjusting.
Going back to your studies
The same advice goes if your condition allows you to return to your studies. Talk to your student counsellor about starting out slowly by only following a few courses, until you know what you are capable of.
Do a ‘trial run’
A few weeks before you return to work or your studies, it may be helpful to dress and plan your day as if you were going to work or school, sort of a 'trial run' to establish a routine. Consider your meals and how many times you need to change or empty your pouch – and plan your day accordingly.
Lisbeth, living with an ileostomy: I'm still working 12 hours a week. I was open about my situation and what it involves – and it helps a lot to be surrounded by colleagues who know my story and knows what they can require from me.
Who should you tell?
When you go back to work or school, it is entirely up to you if you wish to share your procedure with the people you interact with.
However, it's a good idea to let at least one person know. If you have a medical emergency at some point, it will be much easier if someone already knows about your ostomy surgery.
How to explain your procedure
It is only natural to have concerns about having to explain yourself to new people. Just do what makes you feel most comfortable. Sometimes, preparing a short and confident explanation will help put your mind at ease.
For instance, you could simply explain briefly that you went through a serious illness, and because of that you had major surgery and now wear an ostomy pouch. Avoid being too technical, and be open to questions - without over-sharing. Never feel you have to explain details of your surgery to everyone who asks.
