Enjoying school and socialising – a guide for young Peristeen® Plus users
From attending school to enjoying activities with friends, we believe nothing should stop your child doing the same things as others their age. Here we offer practical tips and first-hand advice that can help make sure your child’s next social activity is a success.
Notify others about your child’s condition
Making others aware of your child’s condition (their friends’ parents, for example) can make it easier in the event of unexpected accidents when you are not present. Before deciding whether to inform others, take time to reflect on who you want to discuss your child’s situation with, why you want to discuss it, and what you should say specifically. It can also help to prepare in advance by writing down what you want to say, and trying to anticipate some of the questions you might be asked.
Tane, US, Sophia’s mother, Sophia, 8, was born with spina bifida and uses Peristeen: “ Sophia’s school teachers know that she is on a bowel management programme and we have a plan if accidents occur. She’s in second-grade now and we’ve never had an accident once.”
Sophia is a Peristeen with balloon catheter user (who received compensation from Coloplast to provide this information). Sophia has not used the new Peristeen® Plus Transanal Irrigation system.
Build your child’s confidence
Social activities that can take some of the focus away from your child’s bowel issues are a great way to build their confidence by helping them learn new skills and giving a sense of belonging. Start with small trips. As their confidence increases, encourage them to join a sports club – many offer ways for children with disabilities to take part – or an organisation such as the Scouts where they can build new friendships while providing a regular activity to look forward to.
Esther, Holland, Quint’s mother, Quint, 12, was born with spina bifida and uses Peristeen “Quint joined a scout group for kids with disabilities – being with others just like him has helped grow his confidence.”
Quint is a Peristeen with balloon catheter user (who received compensation from Coloplast to
provide this information). Quint has not used the new Peristeen® Plus Transanal Irrigation system.
Plan ahead when leaving the house
Even if you’re just leaving the house for a few hours, it pays to be prepared. It can help if your child irrigates before going out. Consider having your child wear dark clothing in case of accidents. Pack extra clothing, as well as some absorbent pads. Making the first trips out of the house – whether it’s a play-date with a friend or a first day at school – as stress-free as possible is a good way to build your child’s confidence.
Jasmin, Germany, Jonas’ mother Jonas, 5, was born with spina bifida and uses Peristeen: “Jonas will soon be old enough to stay over at friends’ houses. When that happens, we would probably do Peristeen the day before so he has the confidence to know he can really enjoyhimself the next day.”
Jonas a Peristeen with balloon catheter user (who received compensation from Coloplast to
provide this information). Quint has not used the new Peristeen® Plus Transanal Irrigation system.
Remember you and your child are not alone
Meeting others in your situation can be helpful for both you and your child. Besides learning from their experience, you can also gain reassurance from knowing others have succeeded. Consider searching for patient organisations in your area through social media or by getting in touch with others through your Coloplast Care adviser on xxxxx.
