User Stories
While friends and family can be very supportive, it can be helpful to learn from others with a stoma. Our user stories aim to provide hints and tips about how others have approached living with a stoma.
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Rachel: Living with 2 stomas
Blogger, ‘Double-Bagger’ and Urostomy awareness champion Rachel Jury, talks to us about life with 2 stomas.
Read moreRachel: Living with 2 stomas
Blogger, ‘Double-Bagger’ and Urostomy awareness champion Rachel Jury, talks to us about life with 2 stomas.
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Louise: Returning to work
Tips on how to prepare to return to work and discussing your stoma with your employer
Read moreLouise: Returning to work
Tips on how to prepare to return to work and discussing your stoma with your employer
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Ohad: How to stay active with an ostomy
42 year-old Ohad found it hard to believe, that he could live an active life after surgery – today he plays basketball with his ileostomy.
Read moreOhad: How to stay active with an ostomy
42 year-old Ohad found it hard to believe, that he could live an active life after surgery – today he plays basketball with his ileostomy.
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Shani: Finding love despite having an ostomy
When 23-year old Shani woke up after ostomy surgery, she was sure that no guy could ever be interested in her again – so how would she ever find love, get married, or have children?
Read moreShani: Finding love despite having an ostomy
When 23-year old Shani woke up after ostomy surgery, she was sure that no guy could ever be interested in her again – so how would she ever find love, get married, or have children?
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Jackie: I no longer feel a nuisance dining out
Jackie’s second ileostomy surgery helped her get back to an active social life including dining out with friends.
Read moreJackie: I no longer feel a nuisance dining out
Jackie’s second ileostomy surgery helped her get back to an active social life including dining out with friends.
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Norman: Having the stoma has not altered the way I live my life
“As far as I am concerned the secret is to establish a routine around changing your bag”
Read moreNorman: Having the stoma has not altered the way I live my life
“As far as I am concerned the secret is to establish a routine around changing your bag”
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Sue: Your stoma is by no means a barrier to travel
The key is to be prepared and carry enough supplies in your hand luggage.
Read moreSue: Your stoma is by no means a barrier to travel
The key is to be prepared and carry enough supplies in your hand luggage.
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Yvette: I’m fuelled by a passion for supporting others with a stoma
Providing support for 85+ members can be a huge challenge – but unbelievably rewarding
Read moreYvette: I’m fuelled by a passion for supporting others with a stoma
Providing support for 85+ members can be a huge challenge – but unbelievably rewarding
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Sue: The decision to have surgery and how I prepared
Visiting as many websites as possible and reading all the information from the Stoma Care Nurses helped Sue prepare.
Read moreSue: The decision to have surgery and how I prepared
Visiting as many websites as possible and reading all the information from the Stoma Care Nurses helped Sue prepare.
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Zoey: I take pride in breaking down barriers
Read Zoey’s journey and how she didn’t let her stoma stop her from competing in her favourite sport.
Read moreZoey: I take pride in breaking down barriers
Read Zoey’s journey and how she didn’t let her stoma stop her from competing in her favourite sport.
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Shelley: Sex and Intimacy
It’s a perfectly normal part of life and ostomates deserve to enjoy a healthy sex life if they want to.
Read moreShelley: Sex and Intimacy
It’s a perfectly normal part of life and ostomates deserve to enjoy a healthy sex life if they want to.
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Bruce: Back behind the reel
It really doesn’t matter a whole bunch when you get to a certain point whether you catch a fish.
Read moreBruce: Back behind the reel
It really doesn’t matter a whole bunch when you get to a certain point whether you catch a fish.
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Wendy: An awakening
How Wendy went from never wanting an ostomy bag to almost feeling sorry for people without one.
Read moreWendy: An awakening
How Wendy went from never wanting an ostomy bag to almost feeling sorry for people without one.
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Ken: My tips for skin care around the stoma
How Ken went from having sore and patchy skin to finding the recipe for healthy skin.
Read moreKen: My tips for skin care around the stoma
How Ken went from having sore and patchy skin to finding the recipe for healthy skin.
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Kevin: Returning to work with an ostomy
“With my ostomy the sky is the limit, I can now do whatever I want to do.”
Read moreKevin: Returning to work with an ostomy
“With my ostomy the sky is the limit, I can now do whatever I want to do.”
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Wendy: Coping with pancaking
Nobody had ever told Wendy about the phenomenon known as pancaking. This is when output is collected around the stoma instead of going into the pouch.
Read moreWendy: Coping with pancaking
Nobody had ever told Wendy about the phenomenon known as pancaking. This is when output is collected around the stoma instead of going into the pouch.
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Nicola: Tips for your wardrobe
Nicola gives her tips on how to create the perfect wardrobe for people with a stoma without breaking the bank.
Read moreNicola: Tips for your wardrobe
Nicola gives her tips on how to create the perfect wardrobe for people with a stoma without breaking the bank.
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Clive: The first year of living with a stoma
Clive shares his experience of dining out and resuming old hobbies in the first year after his surgery.
Read moreClive: The first year of living with a stoma
Clive shares his experience of dining out and resuming old hobbies in the first year after his surgery.
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Morten: How I competed in an ironman with a stoma
How I competed in an ironman with a stoma
Read moreMorten: How I competed in an ironman with a stoma
How I competed in an ironman with a stoma
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Nicola: Swimming with a stoma
Nicola gives her best tips if you are going for a swim on your holiday.
Read moreNicola: Swimming with a stoma
Nicola gives her best tips if you are going for a swim on your holiday.
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Ken: Air travel with a stoma
Read Ken's tips for flying with a stoma.
Read moreKen: Air travel with a stoma
Read Ken's tips for flying with a stoma.
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Clive: The importance of support
For Clive, support from family and friends has been absolute key before and after his ostomy surgery.
Read moreClive: The importance of support
For Clive, support from family and friends has been absolute key before and after his ostomy surgery.
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